Happy Mother's day, Mum

Hi Mum, Hope you are having great day and dad is spoiling you for us (my brother and I) I am sorry I couldn't be there with you but I am there in spirit. I appreciate your help over the years and I love you (and dad) very much. Hope you are coming back in UK for a visit soon.

Since it's Mother's Day today in UK, I attempted to call my mum, sadly the phone weren't loud enough so I had to text her instead.

Few days ago I was annoyed by response of the sensory centre who helps deaf/HOH people to test out phones. My cochlear implant recommended me and a friend also a CI user to the sensory centre. We arrived there expecting to try at least one phone but left without trying ONE phone. The lady said we need phone training...eh! and they are sorting this out with my CI centre, why would my CI centre tell us to go there without "phone training" also this is very first we had heard of and the CI centre never mentioned this. So we have to wait until at least April for our appointment. I so wanted to get the phone that I can use/hear well/clarity is clear enough so I could call my mum on her Mother's day as I know this would make her day. Oh well... Never mind, there's next year, mum.

On good note I am picking up alot of new sounds....

I can hear my mobile phone ringing in the next room!!!

I have the pleasure of hearing my beloved dog Boris tags jangling while we are out walking. This gave me chance to keep walking knowing his whereabouts up to about 30 feet without looking, if the jangling stops, I would check for him. Pre Implant I was always looking around and keeping eye on Boris, I was frightened for his safety.

Yesterday, We were playing ball. I threw a ball over towards to the pavement, Boris ran so fast and stopped on the pavement.. I could hear him skidding on the pavement... owwwiieee!! that must be painful, I checked his paws... tough little bugger was fine!

I can tell the difference between different bird singing.. Magpies, Jays, Crow, but having difficulty identifying black bird, blue tit their singing is very high and sound similar. I walk around the park hearing all those singing at ease, no struggling to listen.

So far I had same mapping since before I went to Austria more than 2 months ago, it does need tiny tweaking but I think I would settle for this mappings until Mid May when I go for my 9 month tune up, But I don't think I need much of tune up.

Mum's cherry tree had bloomed, daffodils had come out and it had been really beautiful and sunny all week. Hope this would continue next week as I am off to Centre Parc for long weekend.

6 month evaluation

Today I had my 6 month evaluation.....

I am still in the 30/35 db range, since i still experience loud environmental sounds they can't be any better yet.

But.... I got 86% for CUNY! (lipreading and voice) yay!!

Tried the BKB (ransom sentences with voice but no lipreading).... got few words but still can't make out the sentences.

I didn't have any mapping change as the current ones seems to suit me at the moment. Sarah the Audi did add extra to one of my program to enable me to hear the ipod bit better.

Had Speech/language therapy, the therapist was chuffed to bits with my speech comparing to 1 year ago (pre CI), I was told that my speech would NOT improve, proved them wrong didn't I and I didn't have any speech therapy since the switch on (actually since I was 16). She tested some sentences without lipreading, got approx 20 out of 30 sentences right!! whoooo hooo... never thought I would achieve this! I am pleased as punch as everything seems to be on the right path.

At the end of my evaluation I volunteered to help Sarah and another Audi to be their guinea pig, testing a new equipment that they haven't tried before today. I was the 2nd guinea pig to test for them... I think they need more practice to make it sense!!
Basically the new test is similar ABR (auditory brainstem response)test which I had during my candiacy assessment. This time they are doing this with the implant. The connections is same as ABR and using same connections as we would have done with mapping, all I had was 4 sticky electrodes on my head, processor plugged in to the computer, it reads the waves of my brain responses to the sound using the CI.
They want to see how people progress with their auditory nerve/brain stem before and after CI operation. Pre implant I had poor responses (in their words) and today the responses is very good.

Overall it had been great afternoon! Sarah had booked me down for 3 months time instead of 6 month, she felt that I would need another tune up/envaluation sooner than 6 month.

Oh the spring is here for me.... Heard the birds sing this morning.. Can't wait for my Mum's cherry tree to bloom and the tulips to emerge as they are my favourtie flowers.

E-Postcard from Austria

Dear Friends and Family,

Hereby I am in Austria on 2 week holiday, spending time with my Parents and of course my first experince on the slopes with the Cochlear implant. I must say it had been a surreal time!

On Saturday morning of 24th January, Very early I say! I went to Southampton Airport, it's a very small airport which is a bonus because I could hear the tannoy almost word to word!!! no jumbled garbles! When my flight were anncounced to be boarded some 20 mins late! It said "PASSEGERS OF FLIGHT NUMBER xxxxxx TO SALZBURG PLEASE PROCEED TO THE BOARDING GATE 7" I was dumbfound when I heard it! I was sort of expected what to listen for but weren't expected to hear the whole thing clear as day!

It was small and quiet plane, Not full plane more of half full plane of 70 or so people. Behind me was a little boy, as I noticed that his father who were sitting next to him had been reading DR Who to him and showing posters of those sci fi robots etc. Later perhaps halfway through the flight, I heard whisper "lady" then again then a small hand reached to my shoulder obviously he wanted to say something. I had my hair down, the coil tucked under my hair but sometimes my hair slides, the coil can be exposed. The little boy of about 4 or 5 said "what is it on your head?" I thought of DR who... I said "I am a cyborg" his eyes were wide as saucers and went "wow!" So I took it off and showed him, explained to him and his father what's it is. I had made a friend for the rest of the flight! I haven't yet spoke to a small child since I had the implant, and here on the plane is me and him chattering away about Dr Who!.

When we made to my parents, they had made every effort to make the house less Echoy, It is still echoy but so much better than it was in October which I was unable to wear the processor during the time we were in the house. This time I had worn the processor all the time. I am so glad of Sarah my audi made a quieter programme of my usual program which I was able to use in the house more comfortably. And the usual program when I am out and about.
I had heard alot of new sounds. When skiing I could hear myself over the snow and Ice. I also heard other people skiing while I was on chair lift. In Nassfeld at halfway point there is a huge boom boxes that blast out music (I don't know how people can eat next to them!) I could hear it up some 1000 meters away!
With 1.5 meters already compacted in the garden (above 2 meters up on the ski slopes)We still keep getting fresh blanket of snow on daily bais. Some of the days it had snowed so much the visiblity were quite bad we couldn't hardly see. On sunny days (only two of it so far!) I had blast down the mountians feeling alot more confident since i can hear people behind me. I also had started to wear helmet due to that if I fall I wouldn't want the skis to hit the back of my head especially since I have the implant lodged on my skull and wouldn't want reimplant. Prevention is better than cure!! I had few trials and errors wearing the processor and helmet! On the first day of wearing the helmet with the sunglasses, I found out that the sunglasses arms a bit too thick and it was causing sore skin just below where the implant lies so tried the extra padding on the 2nd day but it keeps pushing the coil off so I ripped the padding out, tried the Helmet/goggles/no extra padding it has been great since! so I have found the solution.
I had been taking pictures, i heard different types of clicking on the camera! I didn't know they do different sounds!...
Since it had snowed so much my parents house is huge and needs the paths cleared often so we won't get snowed in! I had been helping my father snow shovelling resulting few blisters in my hands! It had been fun. One really heavy snow day instead of skiing we went to Ikea 40 mins away for few things for their house, on the way there the roads wasn't too bad. On return trip the snowfall was getting heavy the motorways were getting covered in settled snow of few cms or so, you would have thought gritting but they used huge snow ploughers (one on each lane) every 5 kilometers or so causing few Tail back of traffic. Over night it snowed another 4 inches and another snow shovelling session before we could go skiing.




Before my arrival my mum had twisted her ankle so were confinded in the house for few days doing ironing, sewing, etc. I was on the computer one evening playing games, I heard gentle swishing "swish swish".... I looked for the sound... it was my mum ironing! She looked at me in amazement and said "this is so quiet!"
I also had few phone call practises to Blighty, One to my Aunt Jackie who was blabbing after few sentences as she couldn't contain her exticement for speaking to me on the phone! One to my Brother on his 30th birthday, he was quiet as mouse and needed to speak up (tut tut)!!! 2 to my beloved nana, hers was the best of all as I was able to pick out ransom words, she spoke very clearly... Me thinks start annoy her with phone calls when I get a new phone.

For those who doesn't know what the coil is it's round thing with magnet in the middle that sticks onto my head.


Auf Wiedersehen for now... A picture of neighbour's sweet cat Stella aka a little Bandit.....She was up our tree eating the bacon rinds left out for the birds and The sunset from my parents house. Enjoy.

New year and new hobby!

Last few weeks had been bit of turmoil. I had problems with listening to voices and too much environmental sounds, also the new settings (early Dec) on my processor were strangely too loud, i couldn't turn it down further on my favored program! I asked my usual Audi pre Xmas to check it out but as it's Xmas it was difficult so i had to make do with quiet setting until last Monday.

I went to the centre with list of problems. Before we started with new tune up she did hearing test with the levels I was comfortable at it was 40 db across but with a dip to 50/60 in the middle (1000/2000 Hz), we had no idea why this is happening. She also tested me at my uncomfortable levels (thank god for sound proof room) it was 15/20 with a dip in the middle also. It indicates that there's tweaking needed. Audi also noticed that I was talking very quietly... yeah the setting is too loud for me!

We had quite a long session. I had my DR (dynamic range) moved wider so I have more of quiet sounds (comfort levels) and more of louder sounds (threshold) but balanced if that makes sense (perhaps someone on board will explain better).
We tried slower speed but I found it too flat, we worked on faster speed but similar map to my previous map of slower speed.
I also had my NRT (nerve response test) done, it was done while I was under GA during my cochlear implantation operation to test each electrodes to see the responses to nerves and the thresholds I can tolerate, it is quite unpleasant test, I couldn't do it during my 3 month review. It wasn't too bad this time round, The levels met the thresholds now which is good. The unpleasant ones I had experienced, are the ones switched off (I have 4 off).

Since Monday I had few new experiences, I was tapping away on my computer, watching telly which is quite loud to hearing person I HEARD my washing machine click when it finished!! it was about 30 feet away also I had started to put my phone on ring instead of vibrate alert, and began to notice when it rings not on me but around the house! These sound would have never happened if I didn't go for CI! I was in awe with these sounds.

I had Claire over for the night, her job isn't far from my house, she's also CI user, she had hers for nearly 3 months and is doing well. I asked her if she could hear my dog on the tiles, cat meow... that kind of thing. It was new sounds to her.

I took up new Hobby, Thought it's time to meet groups... Dog Agility. Man, that was fun. Boris and I loved it. It involves alot of listening and communication with the dog, also there's group of us, lots of barking dogs... listening is hard! I had to teach Boris new words like Up (jump over poles) tunnel, weave, left or right, at the same time the coach was yapping (I couldn't understand her without lipreading) but managed to enjoy the fun.

Good grief, i just realised...

That.....Yesterday it was A year since i was refered to the Cochlear implant centre for my first intital appointment. And accepted to be put on waiting list for tests , I was expecting about 18 month wait, but I started my assessments few weeks after the appointment. Yes, it was bit of mind boogling time!
It's also had been 6 months to the day since i had the operation and next month i am having my 6 month post activation review.
It seems like yesterday when i was a nervous wreck on my first appt. The operation is still fresh in my mind so was the activication day!

I don't regret it one bit! I tried HA alone, couldn't do it... I put my CI on first thing and last thing of the day, When it sounds awful I just turn it down a bit, then consulted the Audi and it's sorted quite quickly.

Words without lipreading still doesn't make sense to me but my environmental awareness is so much better, My lipreading with voice is also so much better. I understand foregin people much better too as it helps when my parents lives in village of germans, belgians, austrians, and few other Europeans.
The other day I was at hunt, it was a new hunt I have just joined, I made few new friends. I had converstation with a young lady, yakking away, I realised she got an accent and difficult lip pattern but managed to hold converstation without hitch, it wasn't easy when you are talking and riding lively horse at the same time! I asked her if she was a Scot... I was right! yay! It was also first time I wore my riding hat for at least 3 hours without feeling discomfort from the coil.

New CI moment

I was busy busy working on something at work. It's very spacious and the floor are hard and covered in lido and hunderds of people lingering about. I began to recongise who's walking up behind me without even looking at them! I got bit of surprise yesterday for the first time when Helen my collegue walked behind towards to me while I was busy sorting out the clothes and in semi focus i thought.... try this.. this is Helen coming, looked up and I was right! So people, you better watch out!

Good bye 2008, Hello 2009

As I type this the old year had just gone with bang, Elton John is blasting away on piano making wonderful piece of music which I wouldn't have experinced pre implant. There is fireworks going off outside, lots of popping, bangs, whistling.

Looking back in 2008, It had to be a great year for me because,

I started my Cochlear implant journey on 15th of January 2008.
I had the operation on 16th July.
I heard highs for the first time in my life on 20.08.2008 (notice the date :-))
Began my hearing journey, I have experienced alot of firsts with sounds, made first phone call, first at recognising different sounds. It had been an amazing journey not just for me, for my whole family and friends. I gratefully thankful for them for their incredible patience and curiosity.

I am blessed with my wonderful parents who left British soil for better life in Austria in Feb 2008, this had given me a wake up call and to be self reliant over night, no more texts to mum saying " can you do this, that?" " can you call this that for me" no more popping into their house for help/advice and my dad's suppers (so that i get away from cooking) the list goes on, I managed do most by myself now and some times when things get difficult I have wonderful next door neighbour Lyn, she has got blind mum whom she cares for 24/7, she would also help me in any aspects and phone calls is one of them! Often I ask her to dog sit (she and her mum loved having him) so I can go out and enjoy my life, she would do it without hesitation.

This year, 2009....
I would go to a centre in Lydhurst and try out the phones, hopefully to purchase a proper house phone, not the minicom type, a proper talking phone!
Do more listening practices with use of accessorises from cochlear, website, ipod and computer, thank you Katie-Louise for her great tips.
Find victims to talk to on the phone!

I think this is enough for this year to start off.

And the worst thing in 2008 is jobs... I am out of job as of 17th Jan, sadly, but won't dwell on it as i gotta to think postive (as my brother says)something will come up eventually.

Hope your old year was good one and happy new year.